Tuesday, May 15, 2007
Horse!
I was thinking the other day about how long it had been since I was been on a horse (maybe two months? Maybe less? Can't be bothered to do the math . . .), and how I didn't really miss it, surprisingly enough. But then we got to Naxos, and everywhere we went--literally--we saw a sticker for Naxos Horse Riding, "horses for advanced riders and beginners," with a number to call. All of a sudden, my familiar prepubescent obsession with horses came back with a vengeance, so I called, and joined yesterday evening's sunset ride (Ian got a haircut and did some works). Iris Neubauer asked on the phone how much experience I had and I said "30 years", and she sounded excited and promised me a horse that would be fun to ride.
Iris is German, so the whole thing was incredibly well organized, and she was right--she had horses for beginners and for advanced riders, and everyone in between. I was put on Fedra (Phaedra), a lovely white and freckled Lusitano/Andalusian mix who was taller than the Naxian horses most people were on, and not quite as bomb proof (read: more fun to actually ride.). The most beginner of the group was a late middle-aged British man with one prosthetic leg; both of us had a great time, and felt that our mounts were chosen well for our abilities. Fedra was built much like my dear friend Shadow--i.e. no withers and very round after her winter of not too much work--and would probably have been a perfect horse for bareback riding through the waves, if we'd been allowed to remove saddles.
Our ride wound through rustling, creaking bamboo forests (I have a scrape across one cheek from an errant, wind-blown stalk that makes me look at bit like the Joker), around fields full of world-famous (so we were told) Naxian potatoes, and eventually onto the beach for a sandy gallop and a trot back through the shallow waves. Fedra really was pretty calm through everything until we got to the beach, and then some flapping flags freaked her out and she pranced around a bit and pretended they were going to attack her. She was irritated at me for not letting her gallop ahead of everyone else when we galloped (we were second in line after the guide), so she pranced around a bit more and tried to kick the horse behind her. At the beach we paused for 15 minutes at a cafe and had sodas and water and used the bathroom; when I got back on, Fedra, impatient to be on the move again, started digging holes in the sand with her left front hoof. This was all fine until she caught her foot on some long slender stick which evidently reminder her of a snake; she leapt around a bit like a big goof for a few seconds, but then calmed down again and the return home was uneventful.
On the ride I met a young American woman, K (or C?) on her first trip to Europe. She joined us for dinner, which allowed us to order more than the usual two dishes, and, since we had someone to talk to, actually made dinner last more than about 20 minutes. Also, the proprietor gave us a a 1/2 liter of wine on the house (to go with the 1/2 liter we'd bought), then dessert on the house (something his children had made up for his wife to cook for them--cookie crust, thick custard middle, pink jello top), and some little shots of Kitron, the local liqueur, also on the house.
In all, a fine Naxian day (aside from the fact that I have a cold).
And a couple corrections, which Ian pointed out (my fact checker, i.e. me, isn't as careful when she's typing directly into blogger at an internet cafe): The place we stayed on Folegandros was Anemomilos Apartments, and our conversation about St Pantalaimon actually had me saying "St Pantalaimos," to match "St PantaMIMEus," because that's what the St was called on our map. But I think everything else is more or less correct.
Thanks for reading!
Sunday, May 13, 2007
And, the last pictures for now . . .
Turns out, the place is Mustache Gyros. Yum.
Well, You Were Tired of Me Writing, Right?
Yet Again, Even More Pictures . . .
Still More Pictures . . .
More pictures . . .
Pictures!
Thursday, May 10, 2007
Afternoon Stroll
We're always smugly exausted and can't believe we went so far by the time we get home.
Yesterday afternoon we set out in a new direction, following a trail to a little settlement, and eventually planning to hit a beach, then wend our way along an easy (i.e. paved) road the one km from the beach to the port, and catch the last bus the 3 kms back to our clifftop home. As we reached the middle of open, hot, thorny countryside, we came upon a quartet of middle-aged Europeans; two Brits, and two French.
"Are you out for a long walk?" the British man, wearing hearty hiking boots, shorts, and a purple tank top, greeted us.
"Well, uh, I guess so." Ian and I were non-commital. We have no idea how long our walks are. We usually forget to have a watch with us, and frequently we lose track of distance as well. "We're planning to take a trail down to Livadi beach."
"OH!" said the man. "You can't take that trail in those shoes! It's a trail, but it's like hiking there," and he waved at the rocky, thorny hillside behind us.
We tried to explain that we hiked every afternoon in such conditions, but he would have none of it.
"We walked up it," he said, "and the trail's easy to see, with piles of rocks and red paint dots marking it," (way more information than we usually get for trails!) "but it's way too long. And those shoes won't work."
"Maybe you should walk up that hill to the church up there instead," his wife suggested. "That would be nice."
"We would be completely lost, wandering around," the French man said, "if we hadn't found these people." His wife nodded, and also looked askance at our footwear.
"Mmmhmm," we said, and "Have a nice walk back." We parted company, found our trail, and had a glorious afternoon leaping down a rocky track, then swimming in the clear chill waters of Livadi Beach.
The patronizing of the English man was very, very mild . . . and therefore practically unnoticeable . . . and so therefore all the more irritating. "The thing that gets me," Ian said, "is that he said it was too far."
But then, I'd probably feel superior if it was two pounds to the dollar instead of the other way around.
Monday, May 07, 2007
Beautiful Folegandros
A few things I'd like to share:
1. Doing laundry in a sink by hand is tedious. However, it does allow for the upper body workout mostly missing from our hikes.
2. We're staying in a place called Anememolos Apartments, on the top floor, in a little studio. We have a sweeping, flying view off the top of a cliff out over ridiculous swimming-pool blue water. Misty distant dream islands float on the horizon, which appears to be rising up as your eyes follow it, presumably due to the shocking drop to the rocky beach directly below. Looking landward, thousands of years old ghosts till hundreds of acres of steep terraced hillsides. Sheep graze contentedly on a precipice below our window. The shower is like showering in an airplane would be--there's a tiny porthole window that looks out over open air and sea, no land in sight at all. Also, the shower is about 2 1/2 feet by 2 1/2 feet square, so it's about the same size as an airplane shower would be.
3. Our morning breakfast is Fage yoghurt (10% fat, YUM), with fresh fruit and local honey, eating on our flying verandah.
4. Donks (to borrow a term from Swallows and Amazons) are everywhere, comical ears pricked forward, snuffling at my cupped hands with their velvety muzzles, carrying old men and water along precarious trails to even more precarious flocks of goats, greeting each other joyously at dawn across the curved, steep, echoing hillsides.
And some Words of Wisdom:
I was out for a solitary hike yesterday morning while Ian worked. At one point, I turned west across the ancient terraces, choosing to avoid the church and farmyard to the south ahead of me. I lost my way, but after bumbling along for a bit in the thorns and granite and slate gravel, I came upon a clear track leading back in the direction of home. Soon, to my relief, I came upon a pile of donkey poop blocking the trail (goat poop, we've found, is no indication of a safe route for huumans). As I stepped over the pile and continued, I thought "Ever so often, a pile of shit lets you know you're on the right track."
And then I thought "Whoa, Calin. Deep."
Friday, May 04, 2007
Pictures from Milos
I'm Tired
“Smoke from the ferry?” I suggested. Yep, that was it. Goes to show how spoiled we are in Seattle.
We found a lovely little hotel by stopping at a travel agent on the waterfront and waiting while he called “a relative with a car” . . . dubious words . . . but the place is walking distance from the ferry and has cost us less than $40 for a double bed, a little fridge, our own bathroom, AC, a TV, and a safe, and a balcony. Ah, Greece.
Anyway, we decide yesterday afternoon, after our nap, that we would walk up to Plaka, an ancient settlement about 5 km uphill from the port of Adamas (reminds me of Battle Star Gallactica) where we’re staying. The main driving road is narrow and winding and full of switchbacks and insane drivers and screeching brakes, but, having looked at a map at the port at one point, we were aware of another possibility, a dotted line easing through a fertile valley past the obligatory two churches and flock of sheep, and up to the Kastro crowning the highest hill in Milos, through the back door, as Rick Steves would say.
We came to a road leading off into the valley and took it, even though it wasn’t marked (you develop a sense for these things pretty quickly), and it was perfect. We huffed along next to a series of ant highways, used so strenuously that they were actually clear tracks along the old stone road, teeming with ants going about their officious business.
The views from the top, of the sun setting and the arid hills and the glowing blue sea, were unbeatable, and worth the climb, and dinner came with a surprise dessert of cherries in syrup and candied orange rind in syrup (fortunately just enough for a taste because more would’ve felt like someone was serving us our just desserts). It was mostly dark by the time we made it back to civilization and fell into bed.
We slept last night for about 9 hours—it was the first time since arriving in Greece that we didn’t have anywhere to be super early—then breakfasted on yoghurt, honey, pear and almonds, took a brief stroll, and I fell back into bed while Ian worked and I slept for another three hours.
The afternoon was spent visiting an ancient Roman amphitheater near the top of the hill that we climbed last night, and some catacombs carved into the crumbling sand and pumice hillside nearby (the official catacombs were closed for repairs, but we peeked into one unofficial one that was definitely a catacomb and not just a cave).
This evening my brief fear that our early morning departure for Folegandros and the fact of our landlady’s still having my passport would come together in an unfelicitous way was assuaged when she arrived home to wash her husband’s wet suit on the verandah where we were eating bread and cheese and baclava (hoping to catch her, it’s true). He had been diving and caught a 2 kilo octopus! We saw octopus drying in the sun next to a café yesterday . . .
All to say that I’ll sleep well tonight, even though I’ve slept very, very well in the last 24 hours already.
And tomorrow: Folegandros! For who knows how long! (boats don’t go to Folegandros every day . . .)
PS—Happy Birthday, Gma Bea!
Wednesday, May 02, 2007
It Begins
We’ve started our summer of nomadism. I’m not sure how coherent this entry will be because I’m suffering from long-haul-traveler’s narcolepsy. An example: We finally boarded our flight to Athens yesterday evening, about 18 hours after leaving home. Yes, we’d cashed in airline miles for business class tickets from Seattle to London, so we did have flat beds, but who can possibly sleep well when they’re heading off on a big adventure? Not me, certainly. So by the time we had had showers at the BA arrivals lounge, left our very heavy day packs at left luggage, meandered around London Borough of Hounslow for several hours, and eaten a tasty dinner at Giraffe back at the terminal, I was pretty much wiped out.
We were seated in an exit row from London to Athens, and a flight attendant sat facing me in a jump seat for take-off. I warned him as he sat that I was about to fall asleep; I didn’t warn him, however, that I would sleep deeply, head lolling, string of drool forming at the corner of my mouth, for only about 5 minutes, and then I’d wake up, snap, and start asking him questions. “Are you based out of London? Do you always fly this route? Where did you start? Oh, Dubai and UAE! Well, that’s certainly farther than Paris!” etc etc. And then I fell asleep again. Until the three men seated across the aisle from me reached some level of drunkeness and became extremely loud, and extremely boring. Isn’t that always the way.
Today we took the 3-year-old subway into Athens and meandered around for a couple hours. The subway, built ostensibly for the Olympics and undoubtedly using EU money, seems to be the first step in turning the country into the bland EU cultured pearl that so many other places have become. I won’t say it isn’t nice—it is. Air conditioned, on time, clean, sleek. And well-monitored—in our four rides today, our tickets were checked twice, and people who hadn’t bought tickets were issued citations, right there in front of us. Also, some man got on and was harassing riders for money; at the next stop, a security guard found him and kicked him off.
Shopping streets are becoming posher, too, with Sephora and Camper and Diesel luring in the young Athenians.
But, as yet, the pearl coating is pretty thin. The city is still a noisy, belching, glaring 7-story sprawl of many square miles, studded here and there with thousands of years old ruins, sometimes just in a vacant lot around the corner and not announced at all. And the central market—the agora for which the fear is named—is still thriving—dried fruits and nuts along the streets, a huge fish hall inside, and in another huge hall, dozens upon dozens of skinned sheep with their heads still on, naked eyes staring, or sometimes indeed just a pile of the skinned heads.
Tomorrow we head to Milos on the fast boat, hoping to get to Folegandros, but happy to stay in Milos for a few days if that’s what it takes.
Saturday, April 28, 2007
Limbo?
Here’s the thing about living in the moment. You’re never actually in limbo, you’re always simply living your life, the life you’re supposed to be living at any given time. So the fact that you may be breathlessly awaiting confirmation that you’re moving to the other side of the world doesn’t mean that you do nothing but wait—there’s packing to do, people to visit, accounts to put in order, large items to sell, and the usual mundane things as well: dogs to walk, underwear and jeans to wash, apples and bread and peanut butter to buy. So when you find out that you’re not, in fact, moving to the other side of the planet (at least not when you were expecting to), it’s not the end of the world. Because you’ve packed things and sold things and organized things all along, and you’ve kept your clothes clean and you’ve been fed a good balanced diet and your dog is happy and not too chunky, and you find that all your groundwork, and all your living, has prepared you to suddenly accept that the entire world is yours. You’re not limited to just one small (but beautiful) country deep in the ocean on the underside of the earth.
And so you choose (because living in the moment rather than emotionally investing in something you have no control over allows you to see the choices and therefore make them) to have four glorious months of summer nomadism. And you recognize that this summer is an amazing gift—freedom from responsibility, from bills, from adulthood. A time of sun, and romance, and diving deep into a glorious ocean of undefined possibility.
Limbo? Not for me, thank you. Life.
Wednesday, April 18, 2007
I Want To Go
I want to go. I want to run away. I want to flee the unnerving knowledge that I’m not in control of my life. That, plan as I might, life happens the way it’s going to happen. I’m lucky if I can react in time to salvage any grace whatsoever, before I fall flat on my face. I want to flee the work I’ve made for the people around me, the chaos I’m leaving in my wake. I don’t want to stay and smooth things over. I want to go.
I want to go. I want to leap into the unknown. I want to revel in the incandescent knowledge that I’m not in control of my life. That, plan as I might, life happens the way it’s going to happen, and I’m lucky if I can react in time to dance away, before I fall flat on my face. I want to leap into whimsy, let my intuition tell me where to experience next, wake each day with the sole expectation of wonder and the thrill of discovery. I want to go.
I want to go.
Monday, April 16, 2007
So, Okay, Not What We Were Expecting
We got word from New Zealand Immigration today that my visa was denied. Seems that recent cancer is an issue for a nation with socialized medicine, no matter how strongly the person who had the cancer believes she’s done. I understand, and Ian understands. We’re in
I was briefly angry—I mean, how frustrating to have someone declare you can’t do something that you believe you want to do! But then, after a delicious lunch of two large margaritas and some food, I felt better. Because the fact remains that we’ve rented our house, we’ve sold our cars, we’ve sold a bunch of furniture, and we’ve moved virtually everything else into storage, so we have some cash and basically no responsibilities.
And so, with the world our oyster (minus
We’re leaving April 30th, and planning to return to
Life. Crazy, huh.
Friday, April 13, 2007
So on Sunday We’re Going To . . .
Saturday, April 07, 2007
Calin and Ian Are Moving to New Zealand FAQ
Q: When are you leaving?
A: Well now, this is an excellent question. Our tickets say April 15th. We don’t have our visas yet, but we’re confident we’ll get them in time. Or not. Regardless, we will sleep somewhere other than 3902
Q: Provided the visa thing works out, where will you be?
A: We’ll be living in
Q: Tell me more about the sheep thing. Are there really that many?
A: For a little perspective, the entire human population of
Q: How about Lord of the Rings? How will that mega-blockbuster be affecting your lives?
A: Well, we will be living in a Hobbit Hole.
Q: Okay, so what are you going to be doing there, anyway?
A1: Ian is going to be working as a fish population modeler for NIWA, which, sexy as it sounds, doesn’t actually involve him wearing different outfits and sashaying around on runways. Rather, he’s most likely to be sitting in front of a computer writing statistical programs.
A2: Calin is looking forward to a new career as a kept woman.
A3: Spackle is going to live with Grammy and Grumpy (aka Liz and Marsh), where he will be spoiled rotten and (we hope) won’t notice we’re gone. We’re trying not to think about it too much.
Q: What’s the time difference?
A: Only three hours, although it’s really 21 hours.
A: Of course! We’re planning to have a couple extra bedrooms to facilitate overlaps. We expect to be that popular.
A: 13 hours from
Tuesday, March 27, 2007
Counting Down
Three weeks from two days ago we get on a plane (or rather the first of a series of three planes) and fly off to
I’ve spent the last two weekends away, visiting friends and relatives, which has necessarily ramped up my activity level when I’m at home, and has helped me start to feel disjointed. For example, I wonder “what’s the point in unpacking my bags and putting away all my clothes again?” And yet, in the next three weeks we’re holding a garage sale and hosting a going away party and potentially having out of town guests for a night or two (A&E in SF, are you reading this???), so in other words we’re actively living in our house still, so it can’t all go to shit yet. But there nevertheless seems to be some futility in putting things away in a chest of drawers that, 2.714 weeks from now, will be stored in someone’s basement anyway.
A while back I made a list of things I wanted to do and people I wanted to see before taking off, and I’ve crossed off all the people (by seeing them, not by deciding not to see them), but I can’t even remember what was on the list of things to do. I don’t feel like I’m missing out, though—it seems I just do a pretty good job of enjoying my life while I’m living it. I try not to focus too much on leaving the dog behind—he’ll be happier with Mom and Marsh than he would be for 20 hours of transit and a month in quarantine, and a kennel whenever we travel, etc etc . . . but it’s sad. He’s a very sweet dog.
The necessary details are marching along. We’ve rented the house, we’ve sold our cars, we’ve hired the movers and scheduled them to deliver a couple major pieces around the city. I typically don’t care that much for spring—it doesn’t grab my soul the way fall and winter and summer do—but I did notice the other day that I was starting to seriously look forward to asparagus and fava beans . . . and the thought of another 7 or 8 months of squash and sweet potatoes made me sigh. But the adventure, the opportunity for a different global perspective, those I’m excited for.
Now we just need our visas to come through soon . . .
Wednesday, March 07, 2007
No Thank You
Last Monday, the day before I had my port removed, I completed my second to last appointment for all things cancer related. I had my meeting with the radiation oncologist, which I appreciated very much indeed. I spent some time with a resident at first, and then with the doctor herself, and both were willing to answer all my questions. The doctor in particular was convinced that radiation therapy would increase my long-term chances of remaining cancer-free. She works closely with my surgeon and my regular oncologist, and I think the three of them make a fine team, and will help numerous other people whose challenge is breast cancer.
She didn’t pull punches in trying to convince me, letting me know that possible side effects include reduced bone density in the ribs under the radiation site (which could lead to easy fractures if I, say, ever fell off a horse) and ulcerated skin at the site which might ultimately need to be healed with a skin graft. These, of course, are unlikely outcomes.
But in the game of probabilities, are these side effects any more or less likely than the possibility that some cells escaped surgery and the naturopathic remedies I was using, and are ominously at large in my body?
The doctor apologized for not having a study that really spoke to my (agreedly unusual) situation; I explained that my husband is a statistician, and I therefore know pretty well that statistics say nothing whatsoever about individual cases, so I wasn’t likely to be swayed by numbers anyway. I’m not sure if that helped or not.
The upshot was, though, that the entire two hours I felt like I was at a documentary screening or something equally unrelated to my specific life. Informative, but in a vaguely distant way. The thought of the possible side-effects didn’t make me afraid; the thought of what might happen if I didn’t do six weeks, everyday treatments didn’t make me afraid. At this stage in how I feel about my health and my life, the entire scenario simply did not apply.
Thursday, March 01, 2007
The Last Step
Two days ago I got my port removed, rather than cause the shit storm that teaching Ian to access it would’ve engendered. It’s great—I feel, now, completely free. In fact, for the last couple days, I’ve felt huge buffeting waves of energy flowing into me and knocking me around. I should clarify—this is definitely spiritual energy, not physical energy. The procedure was relatively short and minor, and took place with only local anesthetic and sedation (something like Valium but with even stronger amnesiac effects—don’t ask me what I did Tuesday afternoon but I’m pretty certain it didn’t include signing any legal documents), but the physical after effects have, nevertheless, included many naps and a lot of richly dream-filled sleep. No, the waves of energy? electricity? come when I’m lying in bed, or on the couch, and something hits me and I feel like I’m suspended, washed this way and that, on a warm, wild sea of possibility. It’s exhilarating, this life.
Tuesday, February 13, 2007
Say That Again?
Last Thursday Ian and I went to the Seattle Cancer Care Alliance for my post-surgical check-up with the oncologist. As I’ve chosen, this go-around, to behave non-traditionally in terms of my care, it wasn’t clear that this appointment was going to be much more than jumping through a hoop, particularly because of my current oncologist situation.
If you’ll remember, my previous oncologist, the one that I had for about 7 years, from June 1999 through the end of May 2006 (okay, that really is exactly 7 years), left Seattle at the end of my maintenance treatments for the infinitely warmer and dryer climes of Tucson, Arizona. My new oncologist, whom I met for the first time in October, right about the time I started having panic attacks, went on maternity leave virtually as soon as she delivered my new diagnosis. She seemed very nice, and more or less willing to not argue with me about seeing a naturopath (she even referred to herself as an allopath, which is a term I’d only seen applied when referring to “the other”) . . . but I can’t say we had time to develop much of a relationship. She’s still on leave (until a week before we take off for
He came in briskly, a man of a type I’m particularly familiar with, in his sixties, looking much like Marsh and much like Ian’s dad, not too tall, with a gray and white beard and a fringe of matching hair. He looked like the kind of doctor who expected his word—however kindly delivered—to be law, and who went home comfortably at the end of the day to his suede-elbow-patched tweed jacket, fireplace, and pipe.
“Why do you have such an enormous file?” he asked, plunking two thick binders on the desk in the examination room.
“Oh, this wasn’t the first time for me,” I said casually. “It’s been several years.”
“Have we met before?”
“Only briefly, for about five minutes last fall. I had a waiting room full of friends in town for another friend’s wedding, and we were late for lunch.”
“Ah, yes. Well, let me take a minute here to catch up . . .”
He proceeded to pull up my recent files on the computer, and Ian and I read over his shoulder as much as we could. It seems that lots has been written about me, which I find warmly comforting. My surgeon’s report in particular was pleasing: “Calin is 34 years old,” it began. “She is delightful.”
After a few minutes of scanning, the doctor was evidently able to come to the conclusion (which was correct) that I had not yet met with a radiation oncologist, even though it had been recommended that I do, and he proceeded to inform me that that was, pretty much, unacceptable.
“I am not asking you to make a choice for radiation,” he said, as I tried uselessly to defend myself. “I’m asking you to make a choice for information. I wouldn’t call you crazy to not meet with a radiation oncologist . . .” he said, leaving us to understand that, in fact, he would.
“Okay,” I said, “I’ll meet with one. You’re right, information is a good thing to have.”
“Excellent. It also says here that your doctor recommended you go back on Herceptin and Zoladex and Letrozole?”
“Yes, she did. And I have chosen not to.”
“What are you doing instead?”
“I’m seeing a naturopath who specializes in homeopathic remedies and herbal cancer treatments.”
“And how do you feel?” he asked.
“I feel great,” I said. “My blood counts, all of them, have normalized since I’ve been seeing him.” I paused. “I feel powerful.”
“Alright.” He paused. “Well then . . . what can we do for you?”
I had a list ready. “I do have three requests. One, I’d like a copy of my mammogram to send to
“The mammogram is easy . . .” he said, turning to the computer and hitting print, “although I have no idea where that will print. Why do you want to get your port out? Is it hurting you?”
“No. If necessary, could I get it back in?”
“Yes. But if it’s not bothering you, why get it out?”
“Because the every-four-weeks flushing is getting to be increasingly inconvenient.”
“Ah. Well,” he said, looking at Ian, “your husband seems to be a reasonably competent individual. We could teach him how to do it so you wouldn’t have to come to a clinic.”
“Huh! Well, that’s interesting,” I said non-committally, but he continued.
“It would cause a bit of a shit-storm,” he said, “but not more of a shit-storm than the rest of the choices you’re making.”
Our mouths gaped, shocked, and then we burst out laughing. Suddenly, I liked the man a lot more, and he became a bit less of a hoop I was merely jumping through.
“I do so appreciate you suggesting this option, I really do,” I said. “Nevertheless . . .”
“You’d like to get it out to put some end to this whole episode.”
“Yes, I would.”
“Okay, you got it.”
He retrieved the mammogram report, reminding me to note that the right breast, the one with the problem, was no longer anywhere on my person. He suggested that we wait and see what, if anything, New Zealand immigration wanted from an oncologist (“If they just want to know if you can tie your shoes, well, I can confidently say that you can, no matter how strange those shoes might be [I was wearing my “rabbit” lace-up boots]”). Then he wrote out the referral to the radiation oncologist and the orders to get my port removed, and sent us on our way.
Tuesday, February 06, 2007
Go, FBI!
In a totally unexpected attack of expediency, the FBI returned our fingerprint cards (required for our visa applications) yesterday, a mere 10 days, or only 6 business days from when I sent them in! It probably helps that neither of us has any criminal record, but nevertheless, this was 2 weeks faster than I’d requested, and 8 ½ weeks faster than they said they could get them done! Ah, the government. Likes to keep us guessing.
I guess.
Friday, February 02, 2007
Proof of Adjustment
I went to the spa today, to sweat out toxins from surgery and the filthy, filthy air we Seattleites have been living with for the last week or so (a downside to the gorgeous, heavy-frost pink and gold dawns we’ve been having, and the windless sunny days, is the pressure inversion that’s keeping all our copious exhaust here on the ground where we can really get to know it), and I have to say, it was a bit strange to see all these women with two boobs each. I have yet to see anyone with a mastectomy at the spa, so I’m not sure why I was surprised to not see anyone else today, but there you have it. I made it a point to not stare at women who might be in a position to look at me, so that they would be comfortable checking out my scar if they wanted to.
I’m definitely feeling the effects of my surgery physically. I want to go rock climbing, but can’t stretch that easily over my head yet. I’ve stayed off the treadmill for the last three weeks to not put any undue stress on my lymph system, and to not sweat until my scar was healed over completely, but I think I’m going to give it a go tomorrow. I’ve unconsciously started using my left hand and arm more for lifting, so I’m bulking up on that side and atrophying on the other side, and in general I’m a bit soft—like I’ve spent the last three weeks recovering from surgery or something. I can even feel the slightly different weight of the left side of my chest (con-boob) compared to the right side of my chest (sans-boob). My sacrum and hips keep bumping out of alignment and sending twinges all up the right side of my back and over the top of my head, but in another couple weeks I’ll be able to wear the prosthesis regularly, which should help balance things out a bit.
It looks like my adjustment to the new me is psychological rather than physical at this point—but the mind’s generally the bigger battle, so I’m doing fine.
Tuesday, January 30, 2007
Thought for the Day. No, for Life.
"Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that most frightens us. We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be? You are a child of God. Your playing small does not serve the world. There is nothing enlightened about shrinking so that other people won't feel insecure around you. We are all meant to shine, as children do. We were born to make manifest the glory of God that is within us. It's not just in some of us; it's in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same. As we are liberated from our own fear, our presence automatically liberates others."
Read "God" as the Universe if you wish. Embrace your power. Shine.
Monday, January 29, 2007
The Long Winter
Ian and I are moving to
We’ll be living in
In a stroke of genius on our part, we’ve managed to be friends with a brilliant person who’s living in
Yes, that’s right, we’re leaving
There are three challenges to this date, so, so soon, so rapidly approaching.
Challenge one is the Visa application process. The lovely and brilliant Chiara filled out the one-page on-line Working Holiday visa, and was accepted within two days. We, on the other hand, are filling out the standard 32-page work visa form. We each have to apply, even though I have no intention of working in any traditional sense. And, in fact, I could theoretically be denied a visa. Sixteen of the 32 pages are an exhaustive medical examination and report, and mine says I’ve had cancer. Recently.
Challenge two is finishing a doctoral dissertation, which lies primarily with Ian, with encouragement and minor editing from me, as well as a willingness to take on Ian’s habitual household tasks.
Challenge three is cleansing our house of a combined 66 years’ worth of accumulated craps (both our parents have already bequeathed our childhood projects and stained math club T-shirts to our own long-term storage in our own basement). I’ve taken on this job, and have been surprised at how much I’ve wanted to cull. We were watching an episode of Seinfeld the other night and Jerry said something about people keeping books they’ve read, for example. “Why do you keep them?” he asked. “They’re like trophies. ‘Look what I’ve done!’” Bingo, I thought sheepishly. More evidence of how Seinfeld mirrors life. So, books, many many many of you, gone. The 26 matching glasses we bought at Goodwill for our New Year’s 2005 party, as well as the various unmatching glasses left over from years of collecting glassware? Gone. Any cooking apparatus with Teflon or an off-brand non-stick coating? Gone. Strange knick-knacks given to us by people who don’t know us quite well enough? Gone. Piles and piles of clothing that either 1) works best with two boobs or 2) I won’t want when we finally get summer again, 18 months after the last time? Gone.
Yes folks, that’s right. Since we’re moving to the southern hemisphere in April, in early, early spring, we’re going to miss the glorious Northwest summer. And we’re missing the evidently not too shabby
Saturday, January 27, 2007
Accessory Boobs
I went to Nordstrom for my boob fittings yesterday, and it was a pretty enjoyable experience, actually. Mom came too, and took me out to lunch afterward at the Nordstrom café. The first bra I was given to try on for size (34 B, for those interested in such things) was the classic granny bra, also the classic mastectomy bra. Enough said. But I gamely let the fitter put it on me, and indeed it seemed to age my upper torso by about 50 years. One nice thing about getting prostheses and mastectomy bras at Nordstrom is that they have an excellent alterations department, though, and “pocketing” is free on any bra in the store—meaning they’ll stitch in a pocket for my accessory boob (which keeps it from migrating my toward my throat throughout the day). So the fitter, about my age, looked at me and said, “Um. I’ll be back.”
When she returned, she had several bras that looked like something a 30-something would be comfortable wearing, as well as an awesome halter top bikini. I ultimately decided on something very similar to the bras I’ve worn before, two black and two beige, then I tried on the swim top.
I was suddenly very, very happy about the smallness of my remaining boob. For one thing, it’s not all that noticeable when I don’t stuff the right side of my bra (N.B.—I do recognize that it’s winter here, and I spend most of my time in thick sweaters and down jackets or vests. The one boob thing might be a tad more obvious in the summer . . . which is actually a good thing about our upcoming plans . . . more on those soon . . .). For another, my body isn’t totally out of balance (one of the reasons for wearing a prosthesis is to keep the body balanced—over time, even a small boob can cause muscle shortening and structural problems). For a third, my boobs are the size that fit entirely within the fabric part of the halter top—both my real boob, and my accessory boob.
I tried on the bottoms, too, a low-cut bikini with metal loops on the sides, but it was cold yesterday and I was wearing black long underwear under my skirt so I just took off the skirt and tried on the bikini over my long underwear. I had taken off my boots, too, but had orange knee-high socks with pink and blue polka dots on, pulled up over my long underwear. Hands on my hips, I looked like a superhero, but one or two clicks off from the paradigm. More like a sortahero.
I’d been referring to my upcoming prosthesis appointment as my trip to get press-on boobs; it turns out they do, in fact, make them. They’re very sticky, and have these strange bumps on them, like magnified gecko feet (or so I imagine, never having seen a gecko foot, although geckos stick pretty well to things). You have to wash them every night, though, and that is absolutely not something I can see myself doing. I don’t wear my contacts mostly because I have to clean them when I do wear them.
Anyway, it’s a bit soon to wear my real accessory boob (more healing is necessary), but I do have a lighter-weight foam one to play with in the meantime, which is also good for exercising because it doesn’t get so slippery as the silicone.
In all, a good day.
Monday, January 22, 2007
Path Report
Clean margins all around, although the one between the tumor and my chest wall was a very, very narrow 1 mm. Still, it was clean, and the narrowness was more due to the “geometry” of my small breast, as the surgeon put it, than anything bad about the cancer. So I’m continuing my non-invasive naturopathic/energetic/Neurolinkic protocols, my healthy eating, and starting my stretching program to get my flexibility back. It looks really cool—I’ll post a (tasteful) picture once the rest of the purple Sharpie has washed off.
Wednesday, January 17, 2007
The Worst Part
*NOTE: If you haven't checked in yet today, be sure to start two entries below with Wow Girl*
I got my drain out yesterday. To make sure the surgery site doesn’t fill up with fluid, at the end of the procedure the surgeon installs a bit of perforated tubing, about where an underwire sits if you’re wearing a bra (except under the skin), that exits the skin under the arm (held in place by a stitch) and ends in a flexible, transparent bulb. There’s a slight vacuum in the system, created when you squeeze the bulb to empty it, then cork it back up before letting go. This vacuum draws the fluid slowly out. The tubing can get clogged with blood clots, so you occasionally have to “milk” it, by pinching the tube up near the stitch with one hand (you don’t want to pull on that stitch!), and pinching and sliding the other hand down the length of the tube to the bulb. I only had one blood clot in the tube, which formed while I was still in the hospital. When I’d cleared it, a long, dark red worm lay coiled in the bottom of the bulb.
The bulb has been inconvenient, as you might imagine. It’s been pinned to my surgical bra, with the extra tubing taped to my side so I don’t accidentally pull at the stitch in some nocturnal flailing (fortunately, I sleep virtually without changing position all night long. And Ian, who is a flailer, is on my left side, so I was pretty safe). Since I’ve been wearing a huge flannel shirt that I bought in college at the height of grunge fashion, the bulb, coupled with some bandage padding, has done a pretty good job of simulating my boob, which wasn’t all that big to begin with (either 230 grams or 280. They told me, but I can’t remember.).
A good thing about me is that I still have lymph nodes under my right arm, and they have done a banner job of keeping the fluid running through my body. So actually, from the time I came home, I never went 24 hours with more than 20ml of fluid accumulating in the bulb, and the cut-off for getting the drain removed was 30ml in 24 hours. I briefly considered just leaving the drain in until my check-up with my surgeon on Thursday, but decided that it was enough of a bother that I’d rather just get it out. You see, not only was sleeping somewhat hazardous; showering was virtually impossible. Even with a handy invention called AquaGuard, which covered the stitch and the tubing exit, I still had the bulb to contend with. Ultimately, I tied it to a ribbon around my neck like a gory accessory for some underground cult. It worked . . . but I’m a little too mainstream to really appreciate all the nuances of such an adornment.
Something handy about the location of our house is that it’s within 10 minutes of every clinic and hospital I’ve been associated with since returning to Seattle in 2000, so when the nurse called me back yesterday morning as the snowstorm waned (Monday the clinic had been closed in honor of MLK), I was able to assure her that not only was I still interested in coming, but I actually could (the 4-Runner always appreciates the chance to show its stuff in the city).
The nurse, Cari, showed me into a room and seated me on the bed. I lifted my arm and she took a scissors to cut the stitch. I felt a touch of wooziness as she grabbed a tweezers and yanked out the last bit of nylon thread, and she asked if I needed to lie down for her to pull out the tube itself.
“No,” I said, “I’m fine.” Automatic response. My brain flitted back for an instant to the first day home, when I attempted to swab the stitch site with a Q-tip dipped in peroxide and water, and found myself immediately having to sit, light-headed, on the side of the tub before I pitched head-first in and made the entire operation moot. Something about a bit of surgical tubing coming out of my body really didn’t sit well with me. “Actually,” I said, “I do need to lie down.”
I lay back and lifted my arm over my head, and Cari said “Okay, this is only going to take 3 seconds, and it’s going to burn 1 2 3 and it’s out!”
“Aaaaaaauuugh!” I cried, as the tube, evidently become a red-hot, glass-sharded poker, ripped out of my chest and fluid started to leak down my side onto the pad I was lying on. In 6 days, my body had clearly already begun to incorporate the tube into itself, and it was loath to let it go. The thought of the procedure after two weeks instead of six days made my stomach turn, but I held it together and the burning eased within a minute.
Later, on the phone with my mother, I realized that the drain removal was by far the least comfortable part of the whole mastectomy process; in fact, the only part that was remotely uncomfortable.
But, as they say, no pain no gain. Glad we got that taken care of.
Narcotics: Not Really a Girl’s Best Friend
Four days after my surgery I felt more woozy, and had more vertigo, than on any of the previous days. I blame withdrawal, from the false god Oxycodone. Oxycodone comes to you in the depths of your discombobulation, offering an easy-going, pain-free existence, certainty about life, joy in all your gifts, and an ability to sleep at the drop of a hat. The price—an intensely satisfying voiding of the bowels—seems small and insignificant in the face of the benefits. And so, without question, even without pause, you pop the pills—two every three hours for the first 24, then two every four hours for the next 36, then one and a Tylenol, then another and a Tylenol, and then it suddenly occurs to you, looking in the mirror at your previously flat stomach that is now distended and taut, and appears to be carrying a 4-month-old fetus, that the price—an intensely satisfying voiding of the bowels, remember?—is in fact way too steep.
Just in case, I’m not even taking the Tylenol anymore.
Wow, Girl—It’s Been, Like, a Really Long Time
And measured in spiritual growth, in soul growth, in the growth of my gratitude for life, and my love for others and myself and this amazing, complex world we live in, it’s been much longer than that.
You last heard from me when I was in
You may remember from reading this entry that I was not going to truck with cancer anymore. And I meant it . . . but I meant it from a position of hopeful yearning, of bravado, but of no confidence. But how could I have had any confidence? I’d entirely given over responsibility for my health to my oncologist and Western medicine, and they , the authorities, don’t believe cancer can be cured, at least not with the tools they currently have. Certainly not with the chemical ones they used on me. So, within that framework, how could I possibly believe it?
Sure, I appeared to have a modicum of control over my health. I ate healthy foods, and exercised regularly, and lived, overall, a pretty clean life. And I’ve also always been strong—of body and of mind and of will—and I used my strong will to convince myself that my health, to a great extent, to the ultimate extent really, was out of my hands. I had convinced myself that, when I got cancer, it was a sign to give myself over to the care of others, and let them choose my path for me.
Well.
It doesn’t work that way.
Sometime last October, I started having anxiety attacks. Without knowing anything (in the must-be-measured-by-scientific-equipment-to-be-true way), I suddenly knew, on a cellular level, that something was wrong. My intuition, which had given me subtle signs over the years, stopped being subtle. “Listen to me!” it screamed, as I sobbed hysterically on the couch at my grandmother’s house, gasping for breath, my arms tingling and black spots swimming before my eyes. “Something is wrong, and you need to figure it out now!”
I began feverish self-examinations of my breast, and noticed changes. Is this particular lumpiness related to the return of my hormones? I asked my nurse. Because if not, than something is wrong. Can I get my mammogram next week instead of waiting two more weeks? Maybe, she said, maybe the changes are normal. You could try to talk to other survivors at Gilda’s Club. But no, we’re not going to change your mammogram appointment; we don’t want to enable hysterical behavior. You can talk to a clinic psychologist, though; he’s very nice.
He was very nice, and briefly helped. At my first appointment he seemed to listen. But at my next appointment, he didn’t. He spent the whole hour teaching me how to control my breathing to keep from falling into another anxiety attack, a technique that I demonstrated back to him in the first 5 minutes. Invisibility doesn’t solve problems, so I went to my third appointment only long enough to tell him that what I needed was something else.
When I finally had my mammogram, I immediately stopped being invisible to my Western medical doctors. Because, of course, what I had felt wasn’t normal, and there was now scientific evidence to prove it. I had ultrasounds as well, right after the mammograms, and the following week a biopsy that clinched the evidence. The cancer was back.
Somehow, even while railing at the Universe for making me go through this again, and feeling—despairing, even—that my life was coming to an end, a tiny, fierce part of me refused to believe that I couldn't be cured. And so I started to take back my life, my will, my spirit—or embrace those things fully for the first time ever—and I started to make decisions based on my intuition and not my desire to have someone else solve my problems.
I began to understand that we are each, individually, responsible for our own health and well-being . . . but that doesn’t mean we can’t seek assistance. In fact, we should seek assistance. We humans are community-oriented beings, and our communities are richly populated by people with myriad strengths, strengths we could not possibly embody all at once, all in one person. So I began to seek out assistance from all the richness around me. Here is the thing, though—intuition cannot be subsumed in a desire for someone to take care of you, no matter who you’re asking for assistance. A naturopath isn’t the answer any more than an oncologist is the answer. An energetic healer isn’t the answer any more than a Neurolink practitioner is the answer. All are the answer, and none are.
You, and what you know to be true about you, and what you believe to be right for you about the teachers you draw into your life, are the only answer for you.
What has been working for me is the following:
A naturopath who specializes in small doses of things and gentle physiological support (i.e. a liver detox that is so gentle you don't know it's happening; you just notice one day that you feel better)
A body worker who also does energy work
My friend the Witch Doctor (a Neurolink practitioner)
An energetic healer
Meditation, and gratitude for this brilliant, amazing life I've been blessed to lead, and learning to live without judging (others or myself)
And a breast surgeon.
(not to mention impressively open-minded friends and relatives, who have stood by my decisions faithfully from the beginning)
I had a total mastectomy on January 10th. It removed my right breast completely, including the nipple and areola (my cancer was intraductal, and all the ducts come out the nipple), the scar from my original lumpectomies, and the skin over the site of the current tumor. My remaining underarm lymph nodes were left intact, as was my left breast, which had never had cancer, even last time when it had spread all over my chest lymph nodes. I have opted not to do reconstruction. The thought of implanting silicone into myself makes me queasy, and one of the side-effects of being in excellent physical condition is that I don't have enough belly fat to transplant that (and inner thigh fat is, evidently, not used). Besides that, reconstruction involves several more surgeries.
And besides that, Amazons all cut off their right breasts.






